Living with Dying: A Handbook for End-of-Life Healthcare Practitioners (End-of-Life Care: A Series)

The first resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families, Living with Dying begins with the narratives of five healthcare professionals, who, when faced with overwhelming personal losses altered their clinical practices and philosophies. The book provides ways to ensure a respectful death for individuals, families, groups, and communities and is organized around theoretical issues in loss, grief, and bereavement and around clinical practice with individuals, families, and groups. Living with Dying addresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and pays special attention to patients who have been stigmatized by culture, ability, sexual orientation, age, race, or homelessness. The book includes content on trauma and developmental issues for children, adults, and the aging who are dying, and it addresses legal, ethical, spiritual, cultural, and social class issues as core factors in the assessment of and work with the dying. It explores interdisciplinary teamwork, supervision, and the organizational and financing contexts in which dying occurs. Current research in end-of-life care, ways to provide leadership in the field, and a call for compassion, insight, and respect for the dying makes this an indispensable resource for social workers, healthcare educators, administrators, consultants, advocates, and practitioners who work with the dying and their families. Edited by Joan Berzoff and Phyllis Silverman Part I. Narratives in End-of-Life Care Fragments of Love: Explorations in the Ethnography of Suffering and Professional Caregiving, by David Browning The Symptom Is Stillness: Living with and Dying from ALS, by Ellen Pulleyblank Coffey The Loss of a Child to Cancer: From Case to Caseworker, by Roberta Hoffman September 11: Reflections on Living with Dying in Disaster Relief, by Les Gallo-Silver and Penny Damaskos Part II. Theoretical Aspects of Death and Dying Introduction To Theory What Is a Respectful Death?, by Stu Farber, Thomas Egnew, and Annalu Farber Dying and Bereavement in Historical Perspective, by Phyllis R. Silverman The History of Social Work in Hospice, by Mary Raymer and Dona Reese The Interdisciplinary Team: An Oxymoron?, by Inge B. Corless and Patrice K. Nicholas Ethical Issues in End-of-Life Care: Social Work Facilitation and Proactive Intervention, by Patricia O'Donnell Spirituality and End-of-Life Care Practice for Social Workers, by Carolyn Jacobs Gender and Death: Parallel and Intersecting Pathways, by Illene C. Noppe Bereavement: A Time of Transition and Changing Relationships, by Phyllis R. Silverman Psychodynamic Theories in Grief and Bereavement, by Joan Berzoff Part III. Clinical Practice Issues in End-of-Life Care Introduction: Clinical Practice The Trajectory of Illness, by Allen Levine and Wendy Karger Clinical Social Work Practice at the End of Life, by Felice Zilberfein and Elizabeth Hurwitz The End of Life at the Beginning of Life: Working with Dying Children and Their Families, by Nancy Cincotta Working with Dying and Bereaved Older People, by Sue Thompson and Neil Thompson Assessing Mental Health Risk in End-of-Life Care, by Katherine Walsh-Burke Pain and Symptom Management: An Essential Role for Social Work, by Terry Altilio Palliative Care and Social Work, by Susan Blacker Integrating Spirituality and Religion, by Barbara Dane A Framework for Multicultural End-of-Life Care: Enhancing Social Work Practice, by Norma del Rio Marginalization at the End of Life, by Shirley Otis-Green and Christian B. Rutland Lesbians and Gay Men at the End of Their Lives: Psychosocial Concerns, by Bruce Thompson and Yvette Coln Palliative Care for People with Disabilities, by Gary L. Stein and Lucille Esralew Clinical Practice with Groups in End-of-Life Care, by Amanda L. Sutton and Daniel Liechty Technology-Based Groups and End-of-Life Social Work Practice, by Yvette Coln Working with Families Facing Life-Threatening Illness in the Medical Setting, by Susan Blacker and Alice Rainess Jordan Helping the Bereaved, by Phyllis R. Silverman End-of-Life Bioethics in Clinical Social Work Practice, by Susan Gerbino and Shelley Henderson End-of-Life Care in the Prison System: Implications for Social Work, by Sheila R. Enders End-of-Life Care in Nursing Homes, by Mercedes Bern-Klug and Kim Ellis The Family Unity Program for HIV-Affected Families: Creating a Family-Centered and Community-Building Context for Interventions, by Christian Itin, Susan McFeaters, and Susan Taylor-Brown Social Work Consultation to Mental Health Workers Serving Children and Families Affected by Disasters, by Lisa Aronson Hematopoietic Cell Transplantation and the End of Life, by Iris Cohen Fineberg Oncology, by John Linder Part IV. Context and Leadership Introduction: The Contexts of End-of-Life Care Current Legal Issues in End-of-Life Care, by Stephen Arons Advanced Directives and Assisted Suicide: Policy Implications for Social Work Practice, by Ellen Csikai End-of-Life Care in Prisons, by John Dawes and Jenny Dawes Social Work End-of-Life Research, by Betty J. Kramer and Mercedes Bern-Klug Financing End-of-Life Care, by June Simmons Taking Charge: Social Work Leadership in End-of-Life Care, by Esther Chachkes and Zelda Foster The Future of Social Work in End-of-Life Care: A Call to Action, by Elizabeth J. Clark Relentless Self-Care, by Irene Renzenbrink